Burning Mouth Syndrome (BMS) Support

Data for good

It’s symptom, treatment and other health data that you choose to share on PatientsLikeMe. All that data helps you track how you’re doing over time, helps the next person diagnosed learn what could work for them, and tells researchers what people really need so they can develop more effective treatments, faster.

We’re more than our disease. Together, we are the answer.

As a member, you have lots of opportunities to get in on data for good. Here’s what you can do today:

• Share your experience with symptoms and treatments. Or simply tell us how you’re feeling. You’ll help researchers understand more about what patients are experiencing every day.

• Lend your voice on important issues, like how to fight stigma, or what should be in an affordable healthcare plan. The forum is where you can find like minds and a lot of support.

• Become a pioneer in our most innovative research to date. You’ll learn about how DNA, biology and experience all contribute to health, disease and aging.

Burning Mouth Syndrome Research Podcast at:

http://relief.news/the-role-of-brain-imaging-in-chronic-pain-research-a-podcast-with-david-seminowicz/

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Burning Mouth Syndrome comments begin at the 14.50 minute point in the podcast.  Many thanks to Professor Seminowicz for his work and support of Burning Mouth Syndrome research.

Orofacial Pain Site from the United Kingdom. Burning Mouth Syndrome is featured at http://www.orofacialpain.org.uk/education/burning-mouth-syndrome/

This site is included because it gives good, specific information, and useful links to resources for patients.

A decent overview of Burning Mouth Syndrome and some treatments and coping strategies to consider.

This website deals with various forms of chronic pain and although its information on Burning Mouth Syndrome is sketchy and partially incorrect, we are contacting them to update this information. 

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The picture featured here is particularly misleading since there are no visible symptoms in BMS.